Research areas
Intellectual Disability
Fetal Alcohol Spectrum Disorder (FASD)
Rare Diseases
Movement Disorders
Family & Community
Measurement & Resources
Rett syndrome and related disorders
Measuring quality of life
Team
Reports and Findings
Investigating the impact of developmental coordination difficulties across home, school, and community settings: Findings from the Australian Impact for DCD survey
To evaluate the participation difficulties experienced by children with developmental coordination disorder in home, school, and community environments.
Published research Child Disability Autism Research Subsite: CliniKids Developmental Coordination Disorder Kids Rehab Research WAOvulation induction and subfertile untreated conception groups offer improved options for interpreting risks associated with ART
To identify and characterise appropriate comparison groups for population studies of health outcomes in ART-conceived births: ovulation induction (OI), subfertile untreated and fertile natural conceptions. Our secondary objective was to examine whether known risks of pregnancy complications and adverse birth outcomes in ART births are elevated in comparison with subfertile (untreated and OI) conception groups.
Published research Child Disability Assisted Reproductive TechnologiesCommunication of individuals with CDKL5 deficiency disorder as observed by caregivers: A descriptive qualitative study
CDKL5 deficiency disorder (CDD) is a genetically caused developmental epileptic encephalopathy that causes severe communication impairments. Communication of individuals with CDD is not well understood in the literature and currently available measures are not well validated in this population. Accurate and sensitive measurement of the communication of individuals with CDD is important for understanding this condition, clinical practice, and upcoming interventional trials.
Published research Language Development Child Disability Child disabilityCan RESPiratory hospital Admissions in children with cerebral palsy be reduced? A feasibility randomised Controlled Trial pilot study protocol (RESP-ACT)
The most common cause of morbidity and mortality in children with severe cerebral palsy (CP) is respiratory disease. BREATHE-CP (Better REspiratory and Airway Treatment and HEalth in Cerebral Palsy) is a multidisciplinary research team who have conducted research on the risk factors associated with CP respiratory disease, a systematic review on management and a Delphi study on the development of a consensus for the prevention and management of respiratory disease in CP.
Cerebral Palsy Published research Child Disability Child disability Kids Rehab Research WA