An estimated half of all children with cerebral palsy also have comorbid intellectual disability, the domains of QOL for these children are not well understood ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2017
• November 2017

The Australian Spasticity Assessment Scale complies with the definition of spasticity and is clinically feasible in paediatric settings ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2016
• January 2016

We have identified that CP registers often do not have quality data on congenital anomalies, necessitating linkage with congenital anomaly registers. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2016
• May 2016

The intervention group improved in goal performance, proprioception, and bimanual hand use and maintained improvement at 6-mo follow-up. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2017
• May 2017

Children with cerebral palsy (CP) participate less in physical activities and have increased sedentary behaviour compared with typically developing peers. Participate CP is a participation-focused therapy intervention for children with CP with demonstrated efficacy in a phase II randomised controlled trial (RCT) to increase perceived performance of physical activity participation goals. This study will test the effectiveness of Participate CP in a multisite phase III RCT. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2023
• October 2023

The most common cause of morbidity and mortality in children with severe cerebral palsy (CP) is respiratory disease. BREATHE-CP (Better REspiratory and Airway Treatment and HEalth in Cerebral Palsy) is a multidisciplinary research team who have conducted research on the risk factors associated with CP respiratory disease, a systematic review on management and a Delphi study on the development of a consensus for the prevention and management of respiratory disease in CP. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2024
• February 2024

To investigate the effects of providing rigid wrist-hand orthoses plus usual multidisciplinary care, on reducing hand impairments in children with cerebral palsy. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2022
• June 2022

Citation: Marpole R, Langdon K, Wilson A. Gastrostomy feeding in children with severe cerebral palsy in Western Australia. Acta Paediatr Int J Paediatr. 2022;111(3):680-681. Keywords: Cerebral palsy; fundoplication; gastrojejunal tubes; gastrostomy; ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2022
• March 2022

We investigate the construct validity, test re-test reliability, and responsiveness of the Wrist Position Sense Test (WPST) for children with hemiplegic cerebral palsy (CP). ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2022
• October 2022

To investigate feasibility of aquatic high intensity interval training for adolescents with cerebral palsy, who can ambulate independently but may choose a mobility aid in some circumstances. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2020
• September 2020

The goal of this study was to understand individuals with cerebral palsy (CP) and their family's attitudes and preferences to genomic research, including international data sharing and biobanking. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2021
• September 2021

Young children who have developmental delay, autism, or other neurodevelopmental conditions can have difficulties doing things in different areas of their life. What they can and cannot do is called their level of functioning. There are lots of assessment measures that aim to assess functioning. ...

• 1. Telethon Kids Institute
• Our research
• Reports and Findings
• 2022
• May 2022