Research Officer
MAPP
Research Interests: quality of life for children with disability,
creative activities for people with disability
Professional experience: clinical psychology consultancy - social & emotional development
- Projects
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Publications
November 2023
A Co-Designed Online Education Resource on Gastrostomy Feeding for Parents and Caregivers to Support Clinical Care
Children with complex needs and severe disability may undergo gastrostomy insertion to support feeding difficulties. Parent education programs are critical components of clinical care pathways but there is little information on parent-reported educational needs. This study describes the collaborative process that yielded a resource to assist parents considering gastrostomy tube placement for their children, and the evaluation of the resource.
Published research Nutrition Child Disability Child disabilityAugust 2022Enabling successful life engagement in young people with ADHD: new components beyond adult models of recovery
To examine the lived experiences of young people successfully managing life with ADHD and investigate the applicability of adult models of Recovery to these individuals.
Published research ADHD Child Disability Child disabilityFebruary 2022Modifiable child and caregiver factors that influence community participation among children with Down syndrome
To investigate modifiable child and caregiver factors influencing community participation among children with Down syndrome.
Published research Child Disability Subsite: CliniKids Child disabilityApril 2021Comorbidities and quality of life in children with intellectual disability
Many children with intellectual disability live with medical comorbidities. This study examined the impacts of comorbidities on quality of life (QOL) of children with intellectual disabilities and whether impacts varied with caregiver perceptions that medical needs had been met.
Published research Academic Biostatistics Child Disability Subsite: Autism & Related Disorders Subsite: CliniKidsJanuary 2021Functioning, participation, and quality of life in children with intellectual disability: an observational study
To investigate associations between functioning, community participation, and quality of life (QoL) and identify whether participation mediates the effects of functioning on QoL.
Autism Spectrum Published research Academic Biostatistics Child Disability Autism ResearchOctober 2019Content validation of the Quality of Life Inventory—Disability
Satisfactory content validity is reported, where ongoing consumer feedback shaped the dataset from which the final items were selected
Published research Academic Biostatistics Child Disability Autism ResearchMarch 2019Psychometric properties of the Quality of Life Inventory-Disability (QI-Disability) measure
Initial evaluation suggests that QI-Disability is a reliable and valid measure of quality of life across the spectrum of intellectual disability
Published research Child Disability Autism ResearchMarch 2019Powered standing wheelchairs promote independence, health and community involvement in adolescents with Duchenne muscular dystrophy
This study used qualitative methods to explore how adolescents with Duchenne muscular dystrophy used a powered wheelchair standing device in their daily lives
Published research Academic Biostatistics Human Development and Community Wellbeing Child DisabilityJanuary 2019Parent-observed thematic data on quality of life in children with autism spectrum disorder
Parent observations provide an initial framework for understanding quality of life in autism spectrum disorder
Autism Spectrum Published research Child Disability Autism Research -
Education and Qualifications